|Ashlynne's biggest protector, her best friend,|
And her big little brother, Gavin
Which brings me to the point of the term "affected". When I look at our life, and our day to day routine, whether it is Ashlynne, or the rest of our family, we are all "affected" by Ichthyosis. No, Gavin, Logan, and Breckyn may not be the ones that have to apply gobs of aquaphor daily, but they also don't get to have the typical daily routine that other kids do. When it's too hot for Ash to do something outside, such as go to the zoo, or play at the park, none of us go. When we have to leave somewhere early to get the bath routine done, we all leave. When we are out and about and people either, state, point, or whisper, it upsets them too. The time that I spend helping with bath and lotions, and changing sheets and vacuuming her room and around her bed multiple times a week, is all time NOT spent with them. Don't get me wrong, I am not complaining about any of this, I am just reflecting on the fact that in a sense, we are all "affected". As I have said before, Ichthyosis isn't just a physical condition, it's also very much an emotional one as well. So all of us in this little Ichthyosis family of ours are affected, even if we aren't the ones that have the affected gene.
By the way, when I asked Logan how he would feel about going to the next conference and meeting other people like Ashlynne, he said he would love that, because Ashlynne's awesome, and if they're like her, that means they are too. Oh to see the world through the eyes of a child!!