Friday, May 29, 2015

ALS: Are you aware?

As many of you know, May is Ichthyosis Awareness Month.  Every year I flood people's time lines with info about Ichthyosis, and pictures, and facts.  I do my best to help educate.  This has been a cause close to my heart for 12 years now, my soap box if you will.  But nearly five years ago, another disease struck close to home and it shares its awareness month with Ichthyosis. This disease is ALS, commonly known as Lou Gehrig's Disease.  I don't know much about the physiology of it, and what exactly it does to attack the body.  All I know is how it affected a man that I cared very much about, and how it devastated my best friend's family.

David was a great man.  Growing up, Alexis's house had a revolving door for all of us loud, obnoxious girls.  With her mom and sister coaching our softball team, we were constantly running in and out before and after games and practices.  We would take over their entire house for a sleepover, and were never turned away, regardless of what else was going on in their life.  David had 2 boys of his own, and all of a sudden, he had about 10 of us girls thrown at him.  Never once did I see him lose his patience with us.  I remember his sitting in his recliner, in his work clothes, laughing as we would run through the house with our shenanigans.  He never told us to quiet down, go home, or go outside.  He took it all in stride.  He even started helping coach our softball team.  He did however stop coaching first base when I put him on his butt with a foul ball....

About five years ago, some weakness started in his legs, and he thought it was his back acting up again.  After several trips to the chiropractor, and a couple of falls, he made a doctor's appointment.  I remember before his appointment, his daughter, Sara telling me that they thought they had it narrowed down to 2 things, and they were hoping for M.S.  At their appointment, they got the news they didn't want to hear.  It was ALS, Amyotrophic Lateral Sclerosis.  A death sentence.  And he was at his grandson's t-ball game that night.  That was in June.  He was at every ball game that summer.  He was at the fair, and by the time the demo derby rolled around, which is a big deal to his family, he was using a walker.  I had done some research on it so I wasn't completely clueless as to what was going to happen, and I was in shock that it seemed to be happening so fast... and still in shock that it was happening to them.

He passed away the following June, after ALS ravaged his body.  He was able to give Alexis away at her wedding, and he and his wife, Linda, had a dance, all done from his wheelchair.  These wedding photos would be the last family photos they would all have together.  He left many, many people behind who loved him, and who were devastated to see this happen to him, and all of those who loved him.  It was a terrible disease.  And for me, it was a terrible year, watching it destroy these people that I love and have considered family for so long.  I watched it take an emotional, physical, and mental toll on not only David, but the entire family.

This is the face of ALS... This is David
This past summer, something went viral that many of you may have heard of, or even participated in.  It seemed that everyone was talking about it, and strategically planning who they were going to nominate to do it next.  The "Ice Bucket Challenge" swept the nation, and the purpose was to raise awareness, and money for ALS.  It raised millions of dollars, and raised A LOT of attention for a disease that is rarely in the news.  A lot of people admitted to participating, but not knowing what it was necessarily for.  And because of this, it received some back lash. Well I just want you to know, that David, and the others robbed of their daily functions and lives, is who it was for.  We did it for all of those families out there who are currently watching it destroy one of their loved ones, hoping and praying that there is a cure before their "David" take his last breath.  And someday, with all of the people devoting their lives to research, there will be a cure.  There has to be, because too many people believe in this cause.  Some of the greatest people I know hold this cause very close to their heart.  And they have a reason to.  They personally watched its affects on a person they loved very much.  A person that can never be replaced, but will continue to impact their lives with the love he showed, and the legacy he left for them.  ALS, took his body, and his physical presence, but it can never erase the memory we all have of his smile.
Ride on David...


7 comments:

  1. That was an awesome read and tribute. Love you all!!

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  2. Hi,This post is really informative and you have posted such precious and informative article which gave me lot of information. I hope that you will keep it up and we will have more informative and helping news from you. Thanks

    ReplyDelete
  3. God bless Dr.Oziegbe for his marvelous work in my life, I was diagnosed of ALS disease (Lou Gehrigs disease) in 2014 and I have tried all I can to get cured but all to no avail, my life was gradually coming to an end, until i saw a post in a health forum about a herbal doctor ( droziegbespellhomecure@hotmail.com )from Africa who prepares herbal cure to cure ALS and all kind of diseases including HIV AIDS, at first i doubted if it was real but decided to give it a try, when i contact this herbal doctor via his email, he prepared an ALS herbal portion and sent it to me via courier service, when i received this herbal portion, he gave me step by step instructions on how to apply it, when i applied it as instructed, i was cured of this deadly disease within 7days, I could not walk or talk understandably before but after i took the herbal cure as he instructed i regained strength in my bones and i could talk properly unlike before, I am now free from the deadly disease, all thanks to Dr Oziegbe. Contact this great herbal doctor via his phone number: +2347089906966 . or email address: DROZIEGBESPELLHOMECURE@HOTMAIL.COM

    DR. OZIEGBE ALSO HAVE A HERBAL CURE FOR THE FOLLOWING DISEASE BELOW:-

    1. HIV/AIDS
    2. CANCER
    3. ALS
    4.HERPES

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  4. My testimony on how i was cure of Amyotrophic Lateral Sclerosis (ALS) by one doctor called prophet suleman. Am Johnson by name and i live Germany. I suffered the illness called Amyotrophic Lateral Sclerosis, i have been in so many hospital's i visited so many herbalist no one was able to cure me the sickness Nealy took my life, until a friend of mine introduce me to one spell caster called prophet suleman i never knew the man was so powerful until i contacted him. That was when i known there is a real prophet who can cure all disease so he cure my ALS with his powerful spells and i regain back my life and all that i have lost come back to me, the prophet is in did powerful contact him if you need a cure for your Amyotrophic Lateral Sclerosis (ALS). contact him ON: prophetsuleman@gmail.com
    1. HIV/AIDS
    2. HERPES
    3. CANCER ALL KINDS
    4. ALS

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  5. (A MUST READ: HOW I GOT CURED FROM ALS DISEASE)
    I am from Philadelphia, I was diagnosed of ALS disease in 2012 and I have tried all I can to get cured but all to no avail, my life was gradually coming to an end, until i saw a post in a health forum about a herbal doctor from Africa who prepares herbal cure to cure all kind of diseases including ALS, MND, Epilepsy, Leukemia, Asthma, Cancer, Ghonorhea etc, at first i doubted if it was real but i decided to give it a try, when i contact this herbal doctor via his email, he prepared an ALS herbal portion and sent it to me via courier service, when i received this herbal portion, he gave me step by step instructions on how to apply it, when i applied it as instructed, i was cured of this deadly disease within 7 days, I could not walk or talk understandably before but after i took the herbal cure as he instructed i regained strength in my bones and i could talk properly unlike before, I am now free from the deadly disease, all thanks to Dr. Contact this great herbal doctor via his email : Sunshineherbalhome@gmail.com

    ReplyDelete
  6. I am thanking Dr OSAGIE. for the excellent work on people's life. We contacted Dr OSAGIE. and he started his work on my life and right now i am cured of hiv i was was diagnosed with HIV and after taking Dr.OSAGIE Herbal medicine i was cured. You can reach him
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    call
    +2347030465649..
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    ReplyDelete
  7. Thanks to doctor Osojo for helping me cure my ALS. I was diagnosed of ALS in 2015 and I have tried all possible means to get cured, i even visited phonologist but all to no avail, until i saw a post in a health forum about a herbal doctor from Africa who prepare herbal medicines to cure all kind of diseases including ALS, at first i doubted if it was real but decided to give it a try, i contacted this herbal doctor via his email: dr.osojoherbalcureofalldisease@hotmail.com and he sent me the ALS herbal cure medicines through courier service directly to my address and details i sent him, he also sent me instructions on how to apply it, which i did as commanded for just a few weeks and luckily it worked and i have been totally cured of this deadly disease. Thanks Dr Osojo for helping me get rid of that dangerous disease that almost took my life. if you are suffering of this same diseases you can as well Contact this great herbal doctor via his email: dr.osojoherbalcureofalldisease@hotmail.com or WhatsApp: +2348100663964 http://drosojoherbalcure.wixsite.com/ofalldisease

    ReplyDelete