|I hope that this young lady realizes how truly amazing, and |
what an inspiration she really is.
Ultimately, I hope that Ashlynne becomes an advocate for herself someday. Right now, she is very timid, and doesn't stand up for herself. With awareness being spread, hopefully some day, it will be easier for her to do so. As people become educated, maybe some of the stares will subside. Maybe someone will be able to say, "Oh, she must have Ichthyosis". Much like we do people with other well known disorders and diseases. But while I want her to stand up, and be a spokesperson for Icthyosis, I don't want her to be a billboard. I don't want her Ichthyosis to define her, or limit her. I want her to help spread awareness, while leading the most normal, happy life possible. After all, isn't that what we should all hope for our kids, happiness?
Thank you to everyone who has shared my blog posts this month, and who participated in Ichthyosis Day at the K. You guys were a huge part of helping our cause. Your support means so much!